12/17/2008.
In the midst of holiday prep and school demands and work and life, the world is swirling around me and I am standing still. And standing with me, overwhelmed but resilient and beautiful and perfect is my son Jake, who has just been diagnosed with type 1 diabetes.
At 8 PM on Wednesday evening we were enjoying a friend's birthday gathering. By midnight, Jake and I were at VCU Medical Center in Richmond, sent there by a post-party blood sugar of 440. By 1PM on Thursday, dizzy from a crash course in diabetes, we were sitting in my car outside a restaurant on our way home, testing our blood sugar side by side. How the hell does everything change so fast?
We have joked. We have talked. We have hugged. We have looked at each other with red-rimmed eyes. I have tried to quickly strike a balance between concerned and casual, and I am already finding it hard to achieve. I feel guilty - but have already told myself all the reasons why there's no point in 'going there'. I had a really hard time as the ER staff marveled at the fact that John and I both have type 1, but I was comforted by the sunny CDE who immediately guessed that we must have met at diabetes camp - and saw that as a good thing. I've half-heartedly explained that we knew there was a chance our kids could develop diabetes, but the odds were strongly in our favor and we'd always hoped it would never happen.
Deep inside my now constantly buzzing brain, I wonder if I always thought it would.
My heart is a little bit broken. For all of the finger sticks and needles and lows on the soccer field and swinging by the nurses office every day on the way to lunch and mean kids at school and the scary thoughts of complications. I do not want him to see me upset, but I also want him to know that its okay for him to cry, or scream, or just get really pissed off at diabetes. I want to make everything okay for him, but I know that it is a tough road and a big deal.
I know how lucky we are. We have already been wrapped in virtual hugs from family and friends and our amazing extensive camp network. I am so grateful he did not get very ill before diagnosis. It is not common for a kid with diabetes to avoid hospitalization and several days of in-patient diabetes education, complete with plastic fruit. I know that he'll benefit from our combined 63 years of living with diabetes. I know that there are advances being made daily, and that his management will benefit greatly. I am grateful that I work from home and can make the 15 minute drive to school at the drop of a hat, and that we have the resources necessary to keep him healthy.
I know a lot about diabetes, but I am certainly about to learn a whole lot more.
24 Comments:
What can I say Kassie?
Hang in there and know that your son will learn from you and your husband on how to live a great life - diabetes or not.
Your friends in dBlogville are here for you and yours.
(HUGS) and positive thoughts and prayers your way!
k2
Kassie,
I don't know what to say. I'm in tears and I feel so much but can't think of a single word of comfort that makes this sting any less.
But you and John are in my thoughts and prayers and if there's any way I can help, please let me know.
Thinking of you. And Jake.
xo,
Kerri.
Oh Kassie, I'm so very sorry. Lots of prayers and good thoughts for all of you. Stay strong.
Oh heck, Kassie. I too am very very sorry, but take comfort in the fact that you guys have already set a good example and will continue to do so.
Strength. Courage. Wisdom. You've go it and will pass it on.
I'm so sorry. I'm sure you'll do a great job, and I'm sure Jake will still be healthy and happy, but I'm still very sorry.
Hi Kassie -
You've got a million (or more) good, strong thoughts coming your way - mine among them.
Sending you - and Jake - big hugs.
- Nic
I'm so sorry. I don't know if our sons are close in age, but please don't hesitate to contact me if you'd like to compare notes. Or even if you just want to vent a little. Again, I'm very sorry. acehotspray@aol.com.
First thought: Well, crap.
Second thought: Well, at least he has two parents who he already has learned plenty from, I'm sure.
Third thought: I wish this wasn't something, REALLY wish this wasn't something he had to learn from you two.
Thinking of all four of you.
Giant enormous hugs to you, John, Jake and also Ryan. Not much else to say other than you are an incredibly strong woman, and Jake is a very smart boy, so I know you'll both make it through this.
Love you millions.
Kassie, I'm so sorry to hear of this. I can't imagine how much of a heartbreaker this is.
I know he'll do fine in the end. But I also know and understand the aggravation and annoyances that diabetes will throw in his way. I hope it makes him an even better and stronger person.
God bless you and your family.
{{hugs}} to you all
Kassie,
Big Hugs for you and your whole family. Sorry to hear about your son's diagnosis. It just ticks me off.
Wendy
I'm sorry, Kassie.
Oh man. That completely and totally sucks. I'm so sorry to hear it. Hang in there.
Having had Type 1 for 23 years myself, I think he's in pretty good hands with you two.
Thinking of you and the fam. Kassie.
It's a diagnosis no one wants and every type 1 parent fears I think.
Jake has the best two parents to support him in this journey but it's one I wish no one had to make.
You are in thoughts and prayers.
{{kassie}}
Kassie,
My thoughts are with you and your family as you continue to stand tall and strong.
Deirdre
Beautifully expressed Kassie. I know that your blog entry is only the tip of the iceberg. Its still so unreal, as familiar as it should be to all of us. Certainly life is a process and Jake's process has been expanded, but (and I wouldn't be Daddy if I didn't paraphrase Bob) you and John have given him a strong enough foundation to handle the shift in the winds of change.
I'm so sorry, Kassie.
If there is anything I can do, please let me know.
Stay strong.
(((Hugs)))
Having one of my little ones develop diabetes is one of my bigger fears these days. I'm sorry to hear that you've had to confront such a fear, but I'm sure you're handling it better than most would/could.
Best wishes as you and your family adapt to this.
Hi Kassie. Jimmy and I are thinking about You, John, and Jake. The reality of hearing about your son being diagnosed with diabetes makes me think about Jackson and our little one on the way and how we would deal with it. I do know that married couples who meet at diabetes camp are amazing and I am sure that you will all be fine. Just another camper to sing "we are the boys" (a comment from Jimmy)...
Love,
Jenni
this disease stinks.So sorry to hear about your son being diagnosed with D.(((hugs))))
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